Bibtex export
@article{ Cecílio2015, title = {Dependence of family care in the perspective of chronic disease}, author = {Cecílio, Hellen Pollyanna Mantelo and Arruda, Guilherme Oliveira de and Marcon, Sonia Silva}, journal = {Revista de Pesquisa: Cuidado é Fundamental Online}, number = {4}, pages = {3305-3316}, volume = {7}, year = {2015}, issn = {2175-5361}, doi = {https://doi.org/10.9789/2175-5361.2015.v7i4.3305-3316}, urn = {https://nbn-resolving.org/urn:nbn:de:0168-ssoar-54063-4}, abstract = {Objective: to understand how the chronic patient feels the fact of being dependent on daily care. Method: this is a descriptive, exploratory and qualitative study, conducted with 12 chronic patients assisted by an extension project. Data were collected in the period April-November 2011 through interviews guided by the research question: "How do you feel to need care from your family?" and subjected to content analysis. Results: categories emerged: "Participation of people with chronic conditions in the family"; "Family care dependency: autonomy threatened"; "Family Distancing: it is not just living in the same environment". Participants revealed feeling excluded from family decisions, bothered by relying on care and often refer to loneliness. Conclusion: the progression of chronic diseases, which is generally associated with reliance on care, often requires a family restructuring and redefinition of roles, changing the routine and family dynamics.}, keywords = {chronische Krankheit; chronic illness; Patient; patient; Krankenpflege; nursing; Familie; family; Familienpflege; domestic assistance; Betreuung; care; Einsamkeit; solitude}}