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Dependence of family care in the perspective of chronic disease
A dependência do cuidado familiar na perspectiva do doente crônico
La dependencia del cuidado familiar en la perspectiva del enfermo crónico
[journal article]
Abstract Objective: to understand how the chronic patient feels the fact of being dependent on daily care. Method: this is a descriptive, exploratory and qualitative study, conducted with 12 chronic patients assisted by an extension project. Data were collected in the period April-November 2011 through inter... view more
Objective: to understand how the chronic patient feels the fact of being dependent on daily care. Method: this is a descriptive, exploratory and qualitative study, conducted with 12 chronic patients assisted by an extension project. Data were collected in the period April-November 2011 through interviews guided by the research question: "How do you feel to need care from your family?" and subjected to content analysis. Results: categories emerged: "Participation of people with chronic conditions in the family"; "Family care dependency: autonomy threatened"; "Family Distancing: it is not just living in the same environment". Participants revealed feeling excluded from family decisions, bothered by relying on care and often refer to loneliness. Conclusion: the progression of chronic diseases, which is generally associated with reliance on care, often requires a family restructuring and redefinition of roles, changing the routine and family dynamics.... view less
Keywords
chronic illness; patient; nursing; family; domestic assistance; care; solitude
Classification
Medical Sociology
Family Sociology, Sociology of Sexual Behavior
Document language
English
Publication Year
2015
Page/Pages
p. 3305-3316
Journal
Revista de Pesquisa: Cuidado é Fundamental Online, 7 (2015) 4
DOI
https://doi.org/10.9789/2175-5361.2015.v7i4.3305-3316
ISSN
2175-5361
Status
Published Version; peer reviewed